"Dear Spinal Cord Meningocele Oversized Thecal Sac..."

Little more than a month ago, Maryann received some life-altering news about her body. Even more life-altering in the sense that she learned about something that had been there all her life, and in having never made itself known, was only life-altering once it was recognized. She could have gone her whole life without ever knowing it was there.

Her journey though shock, surrender, denial, rage, despair and survival has been perseveringly, vulnerably, hilariously, passionately and heartbreakingly recorded on her blog. There's still so much about which she's waiting for answers, not the least of which being when will she finally have surgery, but my heart has been soaring along with her ability to process and feel such highs and lows in the midst of complete and utter "WTF?!".


Her most recent post, felt like such a tender and brave step towards both accepting the reality of what she's learned, and asserting her own anger and hope at the same time. I have so much respect for her. I wanted to share with others this amazing letter she wrote to part of her body. Just reading her words makes my own heart feel 20 times more brave.

Thank you for sharing with us Maryann. You astound me.

(And don't even get me started on how this woman dances)